Beth Dobbin has written a letter to the Prime Minister. Let’s hope it has some impact and not just a sympathetic response. The clock ticks once again- Dear Andy Burnham,My name is Beth Dobbin and I’m an Olympian who represented… Read More ›
Health
No health tracker is good, but one is less bad
After a few months with the Fitbit Air, I think I can conclusively say that it’s the best exercise and health tracker I have ever used. And I’m saying that while realising it’s not a particularly good exercise and health… Read More ›
Abandoned, dismissed and gaslighted
I’ve spent my working life covering neglected issues. But few are neglected like the devastating chronic condition ME/CFS (myalgic encephalomyelitis, or chronic fatigue syndrome). In severe cases, the illness shuts down people’s lives almost entirely, causing an extreme loss of… Read More ›
Fitbit Air thoughts
The Fitbit Air has received a huge amount of attention in the tech world and truth be told I am not sure why. It is effectively an older Fitbit crammed in to a much smaller size and that alone seems… Read More ›
International ME/CFS Awareness Day
Today, on International ME/CFS Awareness Day (May 12), we stand together to honor every person living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)—a disabling, life-altering disease that still lacks a diagnostic test, effective treatments, and a cure. This day is a… Read More ›
A Sip Of Serotonin
Some things give you back a piece of your humanity. A song that finds you at the wrong hour. A film that says the thing you couldn’t. A person who went into the dark and came back still holding onto… Read More ›
London hospital STILL starving severe ME patient
A week after the Canary first reported on the abysmal care of 23-year-old severe myalgic encephalomyelitis (ME) patient Savannah Victora-May, and Queen Elizabeth Hospital’s (QEH) continued intransigence is putting her life at risk. Far from stabilising her condition, Savannah, under… Read More ›
There is an app for everything, if you can find it…
I have been searching for an app, or any solution, that would allow me to compare my activity to the resultant ME/CFS symptoms that appear. It is difficult because symptoms are often delayed and so it can be hard to… Read More ›
TCL NXTPAPER 60 Ultra review (part one)
I decided to take a look at the NXTPAPER 60 Ultra because screens are a particular problem for me. Too much doomscrolling, reading or interacting in any way can lead to the ‘tired but wired’ symptom and affect daytime sleep…. Read More ›
Experts ‘claiming’ not to know
Britain’s soaring sickness bill has left policymakers and economists scratching their heads, with near-record numbers of workers absent on long-term health grounds costing the public purse more than £65.7 billion a year. Some 2.8 million people now claim incapacity and… Read More ›
